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For the first time, a series of educational videos are being created for people living with and affected by Stickler Syndrome.
Stickler Syndrome is an under-diagnosed disease with profound medical consequences particularly with respect to vision and mobility. A genetic malfunction in the collagen found in bones, eyes, ears and the face, can lead to blindness, hearing loss, degenerative joint disease, chronic pain and facial effects. It is our goal to improve access to information on Stickler Syndrome to assist in the reduction of complications and improvement of quality of life.
Kim Barwise, R.N. BScN, Executive Producer
Mother of child with Stickler Syndrome
Quote: "Before having a MRI on my knee, I delivered a copy of the Stickler video to my Orthopedist. This Doctor was so impressed with the DVD and stated it helped explain the findings on the MRI and contributed to my diagnosis and treatment. He thanked me and stated he will share this with his colleges." Rick Bishop lives with Stickler Syndrome
VIDEO 1: Stickler Syndrome - Learning the Facts
Provides the facts about Stickler Syndrome. It aims to increase awareness of what can happen, the possible treatment options and provides support to those with and affected by Stickler Syndrome.
Available Now
VIDEO 2: Stickler Syndrome - Positive Ways of Coping
Acknowledges the challenges of receiving the diagnosis of this chronic disease. Discusses strategies utilized by professionals, individuals and families living with Stickler Syndrome.
LAUNCH in 2007 subject to funding
VIDEO 3: Stickler Syndrome - Latest Research & Treatment
Showcases opinions of top researchers and physicians regarding the current research and treatment options available to people with Stickler Syndrome.
LAUNCH TBA subject to funding
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