Stickler Syndrome is an under-diagnosed disease with profound medical consequences particularly with respect to vision and mobility. A genetic malfunction in the collagen found in bones, eyes, ears and the face, can lead to blindness, hearing loss, degenerative joint disease, chronic pain and facial effects. It is our goal to improve access to information on Stickler Syndrome to assist in the reduction of complications and improvement of quality of life.

Kim Barwise, R.N. BScN, Executive Producer
Mother of child with Stickler Syndrome

FILM 1: Stickler Syndrome - Learning the Facts
Provides the facts about Stickler Syndrome. It aims to increase awareness of what can happen, the possible treatment options and provides support to those with and affected by Stickler Syndrome.

Watch Film 1 for FREE

FILM 2: Finding Hope - Living with a Chronic Condition
Acknowledges the challenges of receiving the diagnosis of this chronic disease. Discusses strategies utilized by professionals, individuals and families living with Stickler Syndrome.

COMING SOON (2010)