Related Sites

UNITED KINGDOM/EUROPE:

Stickler Syndrome Support Group (SSSG)
Website: www.stickler.org.uk
Email: info@stickler.org.uk

UNITED STATES:

Stickler Involved People (SIP)
Website: www.sticklers.org
Email: sip@sticklers.org

New Stickler Syndrome Clinic at Massachusetts General Hospital
Website: http://massgeneral.org/children/specialties/stickler.htm
Contact: Dr. Ruth Liberfarb, MD, PhD.

CANADA:

Canadian Chapter of Stickler Involved People
Website: www.barbspage.com/stickler.html
Email: lockey-shea@canada.com

CORD (Canadian Organization of Rare Diseases)
Website: www.raredisorders.ca

AUSTRALIA:

NETHERLANDS:

BOSK
Website: www.bosk.nl (Dutch support only)
Email: BvanBeek@bosk.nl