Related Sites

United Kingdom & Europe:

Stickler Syndrome Support Group (SSSG)
Website: www.stickler.org.uk
E-mail: info@stickler.org.uk

United States:

Stickler Involved People (SIP)
Website: www.sticklers.org
E-mail: sip@sticklers.org

New Stickler Syndrome Clinic at Massachusetts General Hospital
Website: http://massgeneral.org/children/specialties/stickler.htm
Contact person: Dr. Ruth Liberfarb, MD, PhD.

Canada:

Canadian Chapter of Stickler Involved People
Website: www.barbspage.com/stickler.html
E-mail: lockey-shea@canada.com

CORD (Canadian Organization of Rare Diseases)
Website: www.raredisorders.ca

Australia:

Stickler Syndrome-Australia Support Service (SSASS)

Netherlands:

BOSK
Website: www.bosk.nl and click the Stickler button. (support in Dutch only)
E-mail: BvanBeek@bosk.nl